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text:

"“Parents are told, ‘Your child had a normal newborn screen. You are crazy.’ It’s becoming a barrier to care. That’s the opposite of what it was meant to be,” she said.

I'm so honored that these families trusted me to tell their stories. These moms fought so hard.

www.nytimes.com/2024/05/29/w..."

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title:

"For Some Families of Color, a Painful Fight for a Cystic Fibrosis Diagnosis"

description:

"Universal screenings for the inherited disease promised to get babies diagnosed and treated sooner. But they still miss some children of color."

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• "en"

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createdAt:

"2024-05-29T10:44:55.166Z"